This page contains links to organisations that provide medical and clinical information for patients and their carers about specific cancers and other conditions.
You can find cancer information on our website here.
Where possible our links will direct you to the specific web page containing the information we refer to below rather than to the home page of an organisation.
Please note that you should always talk to your doctor or consultant before acting on medical advice from any other source. We have not provided links to information about drugs or medication - please ask your doctor or consultant if you have queries of this nature.
Some of the websites mentioned on this page provide other information and/or services besides support groups or emotional support.
Cancer – general
Cancerbackup provides information about cancer in general and individual cancers, as well as emotional support and practical advice by telephone, letter or email. The charity also provides publications and information about local services.
Cancer Research UK provides information about different types of cancer as well as a phone line and an email form for specific enquiries.
Macmillan Cancer Support provides a range of cancer information via the Macmillan CancerLine and its information and support centres and mobile centres.
The American Cancer Society has information on different types of cancer (click on the ‘Learn about cancer’ box on the home page), as well as treatment decision tools.
Tenovus provides various information services, including a freephone cancer helpline, an ‘ask the nurse’ email enquiry form and specialist oncology nurses.
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Children and young people with cancer
CLIC Sargent provides information about different types of cancer and leukaemia for affected children and their families, as well as various publications in a downloadable or printed format.
The Teenage Cancer Trust website provides information for young people on different types of cancer.
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Specific cancers
Bowel cancer
Bowel Cancer UK (formerly Colon Cancer Concern) provides information about colon cancer.
Brain cancer
Brain Tumour Action provides various leaflets about different brain tumours and their symptoms.
Breast Cancer
Breast Cancer Awareness provides online information on subjects including prevention, mammograms, treatment and diagnosis.
Breast Cancer Care provides a comprehensive guide about breast cancer including facts about breast cancer and breast health.
Cervical Cancer
Jo’s Trust provides information about cervical cancer, including confidential medical advice online.
Leukaemia
Leukaemia Care provides medical information and a large selection of publications.
Lung Cancer
Lung Cancer Online provides information about symptoms, side effects and complications, as well as tests and procedures.
The Roy Castle Lung Foundation has a range of publications.
Lymphoedema
The Lymphoedema Support Network website provides clinical information on lymphoedema and medical articles.
Lymphoma
The Lymphoma Association website provides information on a range of issues.
Lymphoma-net.org provides information about non-Hodgkin's lymphoma.
Mesothelioma
British Lung Foundation provides information about mesothelioma and what to expect from your local NHS.
Oesophageal Cancer
The Oesophageal Patients Association site provides information about coping after oesophageal surgery, including diet and lifestyle changes.
Ovarian Cancer
Ovacome provides information about ovarian cancer as well as advice on what to expect from your medical team and what you may want to ask them.
Prostate Cancer
Everyman provides information and advice on testicular cancer and prostate cancer.
Prostate Support Association offers information about the condition and treatment.
The Prostate Cancer Charity provides information and advice, as well as a toolkit that can be tailored for each patient.
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Other conditions
Acoustic neuroma
The British Acoustic Neuroma Association provides information, including possible treatments.
AIDS and HIV
The Terrence Higgins Trust offers a range of publications on HIV, AIDS and sexual health.
Alzheimer’s
Alzheimer’s Society provides information and factsheets about dementia.
Alzheimer’s Disease International offers information about Alzheimer’s.
Cerebral Palsy
Scope has a range of publications and factsheets for disabled people and their carers (you will need to register with the site to access the factsheets online).
Chronic Obstructive Pulmonary Disease
Breathless with Emphysema and COPD is hosted by a patient and provides personal insights and updates on his own illness as well as information about the condition, how to manage it, treatments and many other subjects.
British Lung Foundation covers a wide range of issues relating to COPD.
Creutzfeldt Jakob Disease
The CJD Support Network offers information about Creutzfeldt Jakob Disease as well as factsheets.
Heart Disease
British Heart Foundation provides information about different heart conditions and how to manage them.
Huntingdon’s Disease
The Huntingdon’s Disease Association provides information about Huntingdon's disease.
International Huntingdon’s Association provides clinical information as well as articles, books and videos.
Kidney Disease
Kidney Research UK provides medical information about kidney disorders, as well as patients’ case studies.
The National Kidney Federation provides clinical information about the kidneys and related diseases, as well as pain control and books.
Liver Disease
The British Liver Trust offers information about the liver and related diseases.
Lung
The British Lung Foundation supports people affected by lung disease through a nationwide network of Breathe Easy support groups, as well as providing information on paper, on the web and on the telephone.
Lymphoedema
The Lymphoedema Support Network website provides clinical information on lymphoedema and medical articles.
Motor Neurone Disease
The Motor Neurone Disease Association offers medical information about MND, as well as advice on coping with symptoms.
Multiple Sclerosis
The Multiple Sclerosis Society provides information about the condition and symptom management.
The Multiple Sclerosis Resource Centre website provides information about Multiple Sclerosis.
Multiple System Atrophy
The Sarah Matheson Trust for Multiple System Atrophy offers information about Multiple System Atrophy as well as advice on managing symptoms.
Parkinson’s Disease
The Parkinson’s Disease Society provides medical information, as well as a free helpline and publications.
Stroke
The Stroke Association provides medical information on strokes, as well as publications and information on rehabilitation and support.
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General information
After-cancer.com was launched by a patient to provide information for fellow cancer patients about handling the side effects from hormonal drugs.
DIPEx covers many different illnesses and includes clinical information, interviews with people who have experience of a specific illness and discussion forums.
Expert Patients Programme runs courses to help people living with a long-term health condition maintain their health and improve their quality of life, and also Looking after me courses for carers.
Doctor Babel is recommended on the MND Association website. You can create a medical record online that can be translated into a number of languages and printed off. Details of a wide range of conditions, surgical procedures and UK medications can be translated. There is a fee for this service.
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Please note: Marie Curie Cancer Care provides links to third party websites where appropriate and is not responsible for the availability or content of any of these linked sites.
