Help shape the future of research into care

by Dr Sabine Best
Head of Research


We have just launched a new survey into people’s unanswered questions about care, support and treatment. We are particularly keen to get answers from patients, families, carers and healthcare professionals.

Despite ongoing research, there are many aspects of caring for people at the end of their lives that remain unanswered or unknown. Given that resources for this research area are very limited, it is important for research funders to understand what is important to patients and families, and to the professionals who work with them.

Back in October we announced the launch of the Palliative and end of life care Priority Setting Partnership to give you a say in setting future research priorities.

The survey has now opened. Click here to take part.

We want to hear from people who are likely to be in the last years of life, current and bereaved carers, their families, and frontline social and healthcare professionals.

Tell us what research questions are important to you. We want you to tell us about anything that you have come across in your experience of palliative and end of life care – professional or as patients and carers – where you have thought ‘I’d like to know the answer to that’, but have not been able to find an answer.

Over the coming months all responses will be assessed to determine which questions are unanswered by current research and which areas future research should focus on.

What is the partnership and who is involved?

The Palliative and end of life care Priority Setting Partnership was initiated by Marie Curie and brings together a large number of organisations interested in palliative and end of life care research. The project is independently overseen by the James Lind Alliance, a non-profit making initiative, which is funded by the National Institute for Health Research.

Its aim is to bring patients, carers and healthcare professionals together to identify and prioritise research questions to influence the prioritisation of future research in that area.

We want future research to bring the greatest possible benefit to people nearing the end of their life, as well as their carers and families, by identifying what questions are of greatest importance to them.

To take part in the survey and to find out more about the wide range of organisations supporting the partnership, go to, email us on, follow us on Twitter @PeolcPSP or telephone us on 020 7091 4153.