Our survey shows the worries people have about caring for a loved one with a terminal illness

Beryl-PeterA new survey, released to coincide with the launch of the Great Daffodil Appeal, reveals the top concerns people would have if they were faced with caring for a loved one with a terminal illness.

Here are some of the main concerns.

  • Management of a loved one’s pain: This was the most frequently mentioned concern, picked by half of the UK adults surveyed. Older people were particularly likely to be worried about this: 67% of those aged 65 and over and 61% aged between 55 and 64 cited it as a top concern, compared to 42% of 18 to 24 year olds.
    Read more about managing pain on our website

  • Not having access to 24/7 care: This was the second most prevalent concern, picked by 44% of people surveyed.
    Find out how Marie Curie can help

  • Strain on finances: The results also show that 41% people would be concerned about the strains caring for a loved one would have on their finances. Younger respondents are more likely to be concerned about this issue, with 52% of 25 to 34 year olds saying this would be a top concern, compared to 31% of those aged 65 and over. This was also a top concern for people of working age in general.
    Information on getting practical and financial help

  • Time off work: Nearly a quarter of respondents (22%) said they would be concerned about whether they would be able to take the time off work to care for a loved one.

  • Lack of information: This was a significant concern, although mainly for older people. 22% of older respondents (aged 55 and over) said that a lack of information about their loved one’s condition would be a top concern while 13% of 18 to 24 year olds felt the same.
    We have a range of information and support online


The importance of information and support


We know that, for people living with a terminal illness, being cared for by loved ones helps them to live well for as long as possible. However, many carers tell us they have had little to no support, often risking their own mental and physical wellbeing and ending up in hospital themselves.

That is why providing as much information and support as possible is so important to allay the very real concerns that people have about caring for a loved one with a terminal illness. Our online information and support service is there for people and their carers. It offers clear, useful information on many of the issues the survey brings up, including pain management, where to get the right care and practical and financial concerns.

And our online community is another important means of support, offering a safe place for people to share experiences with, and get support from, people who understand.