Leadership Alliance - five priorities of care
In July 2013 the findings from an independent review, led by Baroness Neuberger, into the Liverpool Care Pathway (LCP) were published.
The report highlighted failings in the implementation of the LCP and recommended that the Government replace it with individual care plans by 14 July 2014.
Following the publication of the report, the Leadership Alliance for the Care of Dying People (LACDP) was formed by statutory and regulatory organisations such as Care Quality Commission (CQC), National Institute for Health Research and Health Education England, to whom the review panel addressed recommendations.
Last updated: 27 June 2014
One Chance to Get it Right
As the leading charity for terminally ill people and their families, Marie Curie, along with other voluntary sector partners, was invited by NHS England and other key regulatory and statutory bodies to help advise, support and contribute to the work of the LACPD. On 26 June 2014, the alliance published a report , which set out a new approach to care of the dying in England based on the needs and wishes of the person and those close to them.
The approach, which is outlined in One Chance to Get it Right , is based on five Priorities for Care which replace the Liverpool Care Pathway as the new basis for caring for someone at the end of their life.
The five Priorities for Care are:
When it is thought that a person may die within the next few days or hours ...
- This possibility is recognised and communicated clearly, decisions made and actions taken in accordance with the person's needs and wishes, and these are regularly reviewed and decisions revised accordingly.
- Sensitive communication takes place between staff and the dying person, and those identified as important to them.
- The dying person, and those identified as important to them, are involved in decisions about treatment and care to the extent that the dying person wants.
- The needs of families and others identified as important to the dying person are actively explored, respected and met as far as possible.
- An individual plan of care, which includes food and drink, symptom control and psychological, social and spiritual support, is agreed, co-ordinated and delivered with compassion.
The publication of One Chance to Get it Right concludes the formal work of the LACPD in responding to the recommendations in the Neuberger Report. Each alliance member is now progressing their organisation's published commitments.
Dr Jane Collins, Chief Executive of Marie Curie, commented at the time of the publication:
"The failure to tackle poor end of life care condemns individuals to painful or uncomfortable deaths and leaves their families with regrets, questions and often resentment. This is why Marie Curie is also determined to observe how well the recommendations of the LACDP are being implemented and monitored by the responsible statutory and regulatory bodies – including the Department of Health, NHS England, CQC, General Medical Council and NHS Hospital Trusts. We also welcome the role of the independent panel, led by Baroness Neuberger, in providing independent advice to ministers about implementation of the commitments, and in particular the progress made by the statutory and regulatory bodies, over the next 12 months."
As part of this work, Marie Curie has stated its continued commitment to providing the best possible care for people with terminal illnesses and their families by providing high quality nursing and hospice care. We have also committed to supporting other organisations to do the same, working in partnership with others to improve the care everyone who needs end of life care receives. Specifically we are committed to contributing by:
- sharing ways to improve the experiences of terminally ill people and their families, including support for families after the death, whether in the community, hospice or hospital.
- doubling our funding of research , including into better symptom management and improving the experience for Black, Asian, Minority Ethnic groups and other groups who are less likely to be able to access specialist palliative care.
- supporting the NHS to improve how care is delivered in ways that best meet the needs of people and their families.
- sharing our know-how of what works and highlighting new ways of delivering care which may better meet the needs of terminally ill people, their families and carers.