End of life care research seminars
Marie Curie invites a range of speakers to present research findings in palliative and end of life care. These seminars are an opportunity for anyone with an interest to learn more about research in this area and its impact.
Best practice in delivering palliative care to people with learning disabilities
The Marie Curie Palliative Care Research Department, London host the second in a series of research seminars which aim to bring together those with an interest in palliative care research and foster learning, inspiration and discussion. The seminars are open to an audience of researchers and the public.
Date and time: Wednesday 10 January 2018, 5.30-6.30pm
Venue: Sir Ambrose Fleming Lecture Theatre, UCL Torrington Place, Bloomsbury, London WC1E 7JE
Speaker: Professor Irene Tuffrey-Wijne, Associate Professor at Kingston University and St George’s, University of London
Professor Irene Tuffrey-Wijne chairs the taskforce who developed the EAPC White Paper on consensus norms. These provide guidance on what good practice looks like for palliative care in people with learning disabilities. These norms are aspirational. They present a European-wide consensus on quality goals. ‘Getting it right’ for people with intellectual disabilities has huge advantages for palliative care services (or any other mainstream services). Health professionals able to provide good care for patients with this level of complexity and challenges, are likely to be able to provide good care for all their patients – this includes those with other challenges including dementia, or mental health problems.
Enabling person-centred care: developing the Support Needs Approach for Patients (SNAP) with advanced COPD
Date and time: Monday 4th December 2017, 1-2pm
Venue: Rooms 6.1-6.2, Marie Curie, 89 Albert Embankment, London SE1 7TP
Speaker: Dr Morag Farquhar, University of East Anglia
Chronic Obstructive Pulmonary Disease (COPD) is a long-term lung condition that shortens people’s lives. People with advanced COPD have severe breathlessness and face difficulties in daily living. This affects family and friends who provide care and support.
We know that patients have unmet care and support needs in advanced COPD. With Marie Curie funding, Dr Morag Farquhar has investigated some of the reasons why this is and will be discussing a new approach to patient care and support that aims to help encourage conversations between patients and their doctors.
If you're interested in attending, please email firstname.lastname@example.org
Palliative sedation for cancer patients: a European study of the experiences and practices of healthcare professionals and bereaved carers
The Marie Curie Palliative Care Research Department, London hosted their first inaugural seminar on Wednesday 13 September. This event was part of the UCL Marie Curie Palliative Care Research Seminar Series.
Extensive debate surrounds the practice of sedation for symptom palliation, but is rarely informed by experiences of clinicians or bereaved relatives. The UNBIASED study (UK–Netherlands–Belgium International Sedation Study) sought to address this gap by using qualitative case studies.
The study revealed that UK respondents described sedation as a ‘side effect’ of efforts to control symptoms. They perceived a continuum to exist from the normal practice involving low doses of sedatives given commonly for terminal restlessness, to rare situations where it was challenging to bring suffering under control. UK nurses have significant responsibility for deciding when to commence medications prescribed in advance. Belgian and Dutch clinicians sought to enable a patient’s ‘choice’ of sedation.
Speaker: Jane Seymour, Professor of Palliative and End-of-Life Care at the University of Sheffield
Initiating end of life care in acute stroke: Clinical decision making around prognosis
Topic: Knowing when to start end of life care can be a challenge for health care professionals, particularly where limited evidence is available to guide the development of end of life care for people who have experienced an acute stroke.
To investigate this further, Professor Chris Burton of the University of Bangor and his team have looked at how a person is affected by stroke that is sudden and unpredictable, and explored the different types of information used by health professionals to make decisions about end of life care.
Speaker: Professor Chris Burton, School of Healthcare Sciences, University of Bangor.
Chair: Dr. Sabine Best, Head of Research, Marie Curie.
Preferred place of care and death for people with blood cancers
Topic: People with blood cancers such as leukaemia, lymphoma and myeloma are more likely to die in hospital and less likely to be referred to specialist palliative care services.
Dr Howell from the University of York has looked at why hospital is the most common place of death for people with a type of blood cancer. At the seminar she shared the findings of her research and discussing whether people with blood cancers are dying in their preferred place of choice.
Speaker: Dr Debra Howell, University of York
Date: Monday 5 December 2016