Have your say
We asked you to tell us your most important unanswered questions, and we can now report that better ‘out of hours’ care and support for terminally ill was rated the top research priority
Read a summary of our report to find out more about the project and the top 10 research priorities.
Marie Curie initiated a ground breaking partnership to find out what palliative and end of life care research is important to people who are likely to be in the last years of life, their families, and the professionals who work with them.
A large number of organisations came together to form “the Palliative and end-of-life care Priority Setting Partnership” (PeolcPSP) with the James Lind Alliance - a not-for-profit initiative that helps other organisations to set their research priorities based on the experiences of the people who use their services and clinicians. For the first time, people directly affected got the chance to have their say in setting research priorities for palliative and end of life care.
Palliative and end of life care is an under-researched area and requires greater attention and focus. The aim of the partnership is to ensure that future research brings the greatest possible benefit to people with terminal illnesses, and their carers and families, by identifying what questions are of the greatest importance to them.