How our research is helping carers and those who support carers

Marie Curie research

Recent research by Marie Curie, along with the University of Nottingham, Dimbleby Cancer Care and the Carers Federation, is helping both carers and those who support them.

The study, led by Professor Jane Seymour, Dr Beth Hardy and Dr Glenys Caswell from the University of Nottingham, explored the challenges faced by carers when supporting a friend or relative living with a terminal illness. 

During the study, the team worked with a range of stakeholders to develop a training programme based on evidence for people who voluntarily, and through paid work, provide support to home-based carers of people with a terminal illness. The programme includes information and materials a trainer needs, including discussion guides, group exercises and film clips from carers talking about their own experiences, as well as advice on how people who support carers also should look after their own wellbeing.

The training programme and resource pack was launched in February 2015 and is already being used by a number of organisations that offer support for carers. Marie Curie recognised the potential for the training programme to help our Support Line advisers, and we've been using it since the Support Line launched in April. The training gives our advisers a good grounding in their roles and responsibilities and the kind of questions that new carers may face.

The pack will be widely available for carers and carer supporter organisations from August 2015. Stay tuned for information on how to access it.

Note: The training programme and resource pack was developed out of work undertaken as part of an action research project ‘Cascading knowledge about end of life care at home: the development and piloting of a training programme for those who help carers and a carer resource pack’.

The research was funded by the Dimbleby Marie Curie Research Fund. With thanks to Dr Gail Ewing and Professor Gunn Grande whose work on the Carer’s Support Needs Assessment Tool was used to inform this project.