Free social care

Marie Curie is working with five national charities – Help the Hospices, Macmillan Cancer Support, the Motor Neurone Disease Association, the National Council for Palliative Care and Sue Ryder – to campaign to ensure that the means-testing process for social care is removed for people who are terminally ill.

Many terminally ill people who wish to be cared for at home struggle to get access to the social care services that would enable them to do so.

One of the reasons is the complexity and length of the means-testing process that people have to go through to get either NHS continuing healthcare or social care.

Terminally ill people can end up stuck in hospital – and in some cases even die – while waiting for access to the social care that would support them to get home. For terminally ill people, and their carers and families, time is precious. That is why Marie Curie is working with five national charities – Help the Hospices, Macmillan Cancer Support, the Motor Neurone Disease Association, the National Council for Palliative Care and Sue Ryder – to campaign to ensure that the means-testing process for social care is removed for people who are terminally ill, as recommended by the Palliative Care Funding Review and endorsed by the Dilnot Commission.

This would mean that social care is free and immediately available for people who are terminally ill.

Share your story and help our campaign

You can help us by sharing your experiences of a relative, loved one, or friend with terminal illness.

We would like to hear if you have had an experience of:

  • having trouble getting a relative home from hospital to be cared for
  • a lack of support for terminally ill people in their own homes and communities
  • difficulties with the cost of care at home for people with terminal illness

Share your story today

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