Reaction to our Triggers for palliative care report
We have also written to medical and nursing directors around the UK, urging them to ensure that all staff are able to identify when a patient has a palliative care need, that they know how to access palliative care services and that staff, patients and their families are provided with enough information.
The report and our call for action have received backing from several key stakeholders, including the Association for Palliative Medicine, National Council for Palliative Care, Hospice UK, Royal College of General Practitioners, Royal College of Nursing, British Heart Foundation and Alzheimer’s Society.
Here is some of the reaction and support we have received.
- Professor Rob George, President of the Association for Palliative Medicine said: “Adequate and expert care of people as they seek to live with life-limiting illness must be a priority in any civil society. Yet this important report joins a series of publications over recent months showing this not to be the case generally.”
- Dr Ros Taylor MBE, National Director for Hospice Care at Hospice UK said: “There is a glaring gap in palliative care education for healthcare professionals, coupled with a severe lack of awareness and a lot of fear about when a palliative approach could help.”
- Dr Peter Carter, Chief Executive & General Secretary of the Royal College of Nursing said: "Marie Curie's report is a timely reminder that expert palliative care does make a huge difference, but there needs to be recognition at the right time that a person is dying and arrangements must be put in place to ensure that care is available where and when it is needed.”
- Mike Hobday, Director of Policy for the British Heart Foundation said: “We want to see governments and healthcare bodies act now to provide better training for healthcare professionals to give them the confidence to identify patients with heart failure approaching the end of life and open up conversations with heart patients about their end-of-life-care.”
- George McNamara, Head of Policy and Public Affairs at Alzheimer's Society said: “The system must change. Training must be seen as a necessity, not an optional extra.”
- Claire Henry, Chief Executive of the National Council for Palliative Care said: “People need to have meaningful choices about their end of life care, but this will only happen with a greater awareness of how palliative care can help across a range of conditions.”
The report’s message has also been widely shared on social media, encouraging lively debate around the issues raised. However, the conversation is ongoing and we would love to hear your thoughts. Take a look at our campaigns page to see how you can get involved.