Alzheimer’s Society research on dementia and end of life care

by Rachael McCormack PR Manager My Life Until The End: Dying Well With Dementia

New research out today by the Alzheimer’s Society highlights how people with dementia are not dying in the place they want to, with their families and carers unaware of their end of life wishes.
My Life Until The End: Dying Well With Dementia calls for greater awareness of the importance of talking about death and dying. This includes planning end of life care in advance to help make the final days of more people with dementia as good as possible and in the place they want to be. According to the report, only six per cent of people with dementia currently die at home. This is a worryingly low number given research that people with dementia could be treated more appropriately and cost effectively at home or in a familiar place of care, rather than unfamiliar hospital surroundings. This is an issue that we are working hard to address. Our Marie Curie Palliative Care Research Unit at University College London carries out research into the health and social care needs of people with advanced dementia and the current end of life care provision for them and their carers. The findings will feed into a new model of care to improve end of life experiences of people with dementia and their carers.