Have Your Say - Help shape the future of palliative and end of life care research
Press release published
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Today sees the launch of a survey which will enable people who are likely to be in the last years of life, current and bereaved carers, their families, and frontline social and healthcare professionals - for the first time - to have their say in setting future research priorities for palliative and end of life care. -ENDS- |
Contact information
Tracy Barrett
Senior Media, PR and Campaigns Manager
- 0207 599 7292
- Out of hours: 0845 073 8699
- tracy.barrett@mariecurie.org.uk
Updated
Notes to editor
Background to the Palliative and end of life care Priority Setting Partnership
The James Lind Alliance Priority Setting Partnership (JLA PSP) infrastructure is hosted by the National Institute for Health Research (NIHR) to provide the support and processes for Priority Setting Partnerships (PSPs). PSPs aim to help patients, carers and clinicians work together to agree which are the most important treatment uncertainties affecting their particular interest, in order to influence the prioritisation of future research in that area. For further information visit the JLA website (www.jla.nihr.ac.uk).
The Palliative and end of life care Priority Setting Partnership (PeolcPSP) was initiated by Marie Curie with the intention to address the dearth of evidence in palliative and end of life care and direct scarce resources at the issues most important to the ‘end users’ of research, i.e. patients, current and bereaved carers, clinicians and health and social care practitioners in general. Marie Curie committed the initial funding and is joined by a number of other funding bodies in the area (NIHR, CSO, NISCHR, the MND Association, Macmillan Cancer Support, Economic and Social Research Council, Medical Research Council and Cancer Research UK) who also want to see improvements in evidence-based care and treatments at the end of life and who committed to co-funding the partnership project. The results of the partnership will help direct future research funding by all the partners and beyond, for the benefit of patients, carers and families.
In addition, there are several other organisations represented on the Steering Group, which will oversee the partnership: Association for Palliative Medicine of Great Britain and Ireland, Help the Hospices, National Bereavement Alliance and Childhood Bereavement Network, National Cancer Research Institute (NCRI) Consumer Hub, National Council for Palliative Care, Royal College of Nursing, Scottish Partnership for Palliative Care and St Christopher’s Hospice.
To date, over 20 organisations – who can reach people with palliative and end of life care needs, life-limiting illnesses, families, carers, doctors, nurses and social care professionals – have pledged their support. To see a list of these organisations, go to www.palliativecarepsp.org.uk/partners-and-supporters.
For more information or to get involved, email us at PeolcPSP@mariecurie.org.uk or telephone us on 020 7091 4153.