Marie Curie announces its largest call for research
Press release published
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Marie Curie is launching its largest-ever call for research in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease Association (MND Association), totalling £1,425,000. In addition to the £1million funding pot from Marie Curie, the CSO will contribute £225,000 of funding and MND Association will contribute up to £200,000. The partnership is calling for applications that address research priorities identified in the Palliative and end of life care Priority Setting Partnership (PeolcPSP), which asked carers, health and social care professionals, and people with terminal illnesses to identify what they thought were the most pressing areas of focus for palliative and end of life care research. Dr Sabine Best, Head of Research at Marie Curie said: “Our call for research is particularly exciting this year. Not only have we committed to looking at the research questions identified by carers, practitioners and people with terminal illnesses in the PeolcPSP but we have two new funding partners, which will broaden the scope of our research and ultimately result in better care for more people living with a terminal illness. “Both the CSO and MND Association were instrumental in the PeolcPSP and their enthusiasm has been reflected in this partnership. The next round of proposals will no doubt come from a wider set of research institutions than ever before, thanks to their contributions.” Dr Alan McNair, Senior Research Manager at CSO said: “The Chief Scientist Office is delighted to be a partner in this exciting collaborative funding call. Research into palliative and end of life care is essential in order to develop the best care models for those with a terminal illness, their carers and families. We are confident that research funded through this call will allow some of the unanswered questions in palliative and end of life care to be addressed” Dr Belinda Cupid, Head of Research for the MND Association said: “This is the first time that we have made such a specific call for research to improve palliative and end of life care for people living with MND. We’re keen to encourage the development of research programmes in this important but often neglected area. “There was a fantastic response from the MND community to the priority setting exercise that finished in January this year. It’s vital that through this call for research we find answers to issues of greatest priority and relevance to people with MND. We’re delighted to continue our successful partnership with Marie Curie.” Funds from MND Association will be matched by Marie Curie and to be eligible for this part of the fund (total fund of up to £400,000) proposals must show relevance to people living with MND and draw on the associated priorities from the *PeolcPSP. Funds from the CSO will also be matched by Marie Curie (total fund of up to £450,000) and must be led by a principal investigator who is based in Scotland. Applicants to this fund must submit proposals that are based on any of the PeolcPSP themes. The remaining £575,000 of the fund, provided by Marie Curie, will be awarded to proposals that focus on any one, or combination of, the 83 priorities identified by the PeolcPSP. Applications are welcome from scientists, clinicians or healthcare workers in UK universities, medical schools, hospitals and some research institutions. The deadline for submitting outline applications is 14 January 2016 and the application form and guidance for applicants can be found on the Marie Curie website. Following initial peer review, full applications will be invited in April 2016. Funding decisions with committee feedback will be available in autumn 2016. -ends- |
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*About the Palliative and end of life care Priority Setting Partnership
The Palliative and end of life care Priority Setting Partnership with the James Lind Alliance was initiated by Marie Curie in 2013 and sought to identify the research priorities that are most important to the end users of research – patients, carers and health care professionals. It was a joint project co-funded by ten organisations, including the Chief Scientist Office and the MND Association.
The PeolcPSP received responses from 1,403 people through an online survey. The data was then analysed to identify interventional questions. These questions were combined and checked against existing systematic reviews and guidelines to determine whether they were already sufficiently answered. This created a longlist of 83 unanswered questions which were prioritised in a second survey and further in a workshop including patients, carers and health care professionals. The results of this survey were published and the final report launched at the Palliative and end of life care Research Summit on 15th January 2015.
About Marie Curie
Marie Curie is the UK’s leading charity for people with any terminal illness. The charity helps people living with a terminal illness and their families make the most of the time they have together by delivering expert hands-on care, emotional support, research and guidance.
Marie Curie employs more than 2,700 nurses, doctors and other healthcare professionals, and with its nine hospices around the UK, is the largest provider of hospice beds outside the NHS.
For more information visit www.mariecurie.org.uk
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Marie Curie Support Line 0800 090 2309*
If you’ve got questions about terminal illness or simply want someone to talk to, call the Marie Curie Support Line for free confidential support and practical information on all aspects of terminal illness.
*Monday to Friday 9am–5pm. Calls are free from landlines and mobile phones.
About the Chief Scientist Office
The Chief Scientist Office (CSO), is part of the Scottish Government Health and Social Care Directorates. It supports and promotes high-quality research aimed at improving the quality and cost-effectiveness of services offered by NHSScotland and securing lasting improvements to the health of the people of Scotland. CSO supports research initiated by the research community in Scotland and advises the Scottish Government on how research contributes to improvements in health and healthcare
About the MND Association
The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. It is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
It improves care and support for people with MND, their families and carers and funds and promotes research that leads to new understanding and treatments, and brings us closer to a cure for MND.
The Association also campaigns and raises awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
About MND
- MND is a fatal, rapidly progressive disease that affects the brain and spinal cord.
- It attacks the nerves that control movement so muscles refuse to work. Sensory nerves are not usually affected.
- It can leave people locked in a failing body, unable to move, talk and eventually breathe.
- It affects people from all communities.
- It kills around 30% of people within a year of diagnosis, and more than 50% within two years.
- It affects up to 5,000 adults in the UK at any one time.
- It has no cure.
For more information visit www.mndassociation.org.uk